Don’t Say Sorry!

Hey guys–Well I have been feeling a lot better these past few weeks and I am functioning!! I am still tired thats probably my main issue right now and that’s going to be a struggle for a while. (At least I have my pumpkin spice coffee to get me through it!!) So today I talked to my doctor and got some news. I wouldn’t say its bad news, but it isn’t that great. I am not at therapeutic level yet. This means my blood levels aren’t therapeutic enough to help suppress my symptoms and my system. I have to keep going up on my medicine, but you can only go up so fast. It takes me about a month to go up 100 mg on this medication because you have to do it very slowly. It’s not a big deal, I said to my doctor today if I am sub-therapeutic today and I feel this good I cannot wait until I am fully therapeutic, life will be awesome!! Also, I just wanted to touch on the topic of what to say to some one who is sick. When you find out some is sick, don’t say I am sorry. It’s not your fault, and don’t feel bad. Pity can be super annoying on top of everything else. Like I understand that everyone means it in the best way possible but for me I think this is so awesome that it’s happening to me. It’s given me some amazing opportunities and I’ve heard some amazing stories on my journey. I am happy where I am, and I am finally content with what I have to deal with the rest of my life. Sure I think and wish I could keep up and rebound from a late night to have a busy day. But I actually don’t mind a laid back lifestyle. It’s all about balance. But sorry, is just a reaction that I personally get too often. I don’t mind what I go through anymore (I mean, I do) but I don’t see it as a “sorry” situation if you know what I mean. Obviously, anyone would want to be healthy over sick but just encourage the person. Tell the person you love them and how strong they are. Or even something you admire about them including their fight.


5 thoughts on “Don’t Say Sorry!

  1. Glad you’re feeling better. I can’t seem to stay at therapeutic levels they meds make me sick. Can I ask what you’re on? I’m on Plaquenel which is tolerable but I went from methotrexate, to Iumran and now Cellcept. All have made me sick. Now I’m working on getting a biologic. I also take pain killers which help bring some relief.

    1. It’s so hard getting in range-I totally understand where you are coming from! My body just metabolizes medication weirdly which is the problem. My doctor works kind of out of the box which is why he is so successful on helping patients! I’m on lamictal which is a seizure medication but it’s known to help with headaches and since I’ve had a headache for 3 years straight it’s been such a blessing. I see major differences and it took about 2-3 months to get up to the dosage that I would start seeing differences. I really hope they can stabilize you! It’s so tricky treating us.

      1. It really is a battle. Oh my gosh a headache for three years! Ouch!! I’m clobazam but for epilepsy. The meds just make me so sick and my Rheumie blames me, and absolutely won’t think outside the box. It’s so frustrating. If I could I’d look for a new Rheumie but I don’t think there’s that choice now anymore. I’m so glad that you have a great Dr.! What a gift that is in fighting this battle.

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