Hey guys! I didn’t think I would feel well enough to write anything but I actually don’t feel horrible. Just very tired. But I am going to explain to you what I go through every month.
IVIG is stands for IV Immunoglobulin. What they basically do is spin out the Immunoglobulin of people who donate their blood and give it to me. Immunoglobulin are antibodies that help you fight infections. Basically I do this because I have deficiencies in certain antibodies. It is also meant to reset/reboot my immune system for a month. Most people that get it don’t get it for 5 days straight and 5-6 hours each day. It’s very vigorous on a chronically ill person’s body. Each person has different reactions.
Right now I’m on month three out of a four month trial. Each time has been a different experience for me. The first time I was non-stop throwing up with a full blown migraine to the point where I almost had to go to the ER. Let me tell you I’ve barely thrown up in my entire life and this probably added up to all of the times I should’ve thrown up in my life. The second month I had bad headaches for about 10 days. To me that was MUCH better than throwing up and having the worst headache of my entire life.
The scary thing though is that you can contract aseptic meningitis. The symptoms of that include stiff necks and horrible migraines along with some other things. Of course every time I do IVIG I am at risk of contracting this. It is a harmless form of meningitis but is super painful.
Anyways, I have been seeing some differences and some of my work ups and numbers are showing that my body is responding to it. So at the end of month four we are going to go back and reevaluate and see if this is something I should stay on permanently of if I should try a Crohn’s infusion. I am excited to keep seeing improvement but if I don’t consistently get these a month apart my symptoms come back. Lets hope that this keeps working magic!