Hey guys! How are you? I took a break from blogging and tweeting for a while and I am ready to update you guys on my life since then. I know it’s been a very long time but I didn’t feel super motivated to write on my blog for some reason. I know I shouldn’t have just went silent like that but life happened. It’s so crazy. So I am going to break my life down in sections so you can catch up. Ready?! Here we go:
There’s been a huge difference from now and 6 months ago. My every 8 week infusions are my complete lifeline. Because of them I am now able to work out 30 mins a day, be able to be out all day, and frankly do almost anything I’d like to do within reason. I have been enjoying life and celebrating me getting better! I’ve been super happy and positive and I can’t believe I came this far. I had an email sent to me the other day with a letter I wrote last year and it was like a whole different person was talking. I was doing an infusion that was never working and I could barely do more than one thing a day or take care of myself. I documented this on purpose. In fact, I’ve been documenting the entire journey (hence “Her Unusual Journey”) and I am so glad I decided to do it. It’s taken 5 years to make a lot of progress and I cannot wait to see what I am like next year this time or even in 5 years from now. I am confident my quality of life will keep improving immensely.
For anyone that is struggling: don’t give up and keep fighting. I fought so hard to get to where I am today. I didn’t ever think I’d get better for a long time but little did I know what life was going to bring me. I am so grateful and blessed for the most amazing support system.
Like I said I am the happiest I’ve been in a VERY long 5 years or more honestly. All throughout the 5 years I struggled to keep up with friends and a lot of them left my life which really was super hurtful. It’s definitely very hard being friends with some sick but you need to be there for them.
Anyways, I have a great group of friends (& it keeps growing!). I started doing social sports leagues. This past fall I did a yoga league outside in a park downtown over looking the water into October. I made a lot of friends through that and found out about it from a friend in my Theta alumni group. The friends I made from yoga decided to do a cornhole league (which is currently going on). I am the captain of the team and it’s been a lot of fun but we totally suck. I mean we haven’t won one game…ever…That’s not the most important thing but it is kind of funny. Cornhole ends in January and then we are off to start Skeeball the second week of the month. Maybe I’ll be better at that? Anyways, I love my friends. I am so lucky to have them in my life and they make sure I can do things with them most of the time knowing my situation. They also challenge me to keep doing more and get out as much as I can which is great. I am so glad I am no longer sitting in my room in pain anymore.
At the end of January I will be going back to visit Tampa and see all of my college friends. I. AM. SO. EXCITED. None of them have seen the progress I’ve made in the past 6 months so I can’t wait to see their reactions. They’ve all seen me at my worst and I can’t wait for them to see me at my best. I’ll be able to keep up with them more and hang out and actually act my age.
ALSO, I am finally drinking alcohol again! I figured out that if I drink the hard seltzers I do fine. I don’t feel sick and they agree with me the most. I am still finding that hard liquor bothers me and makes me nauseous but maybe I’ll revisit it in another 6 months or so.
This has been the most challenging thing at the moment. Nobody told me how difficult it would be to find a job post college. All of these jobs have high expectations of you having years of experience which is nearly impossible to get if there aren’t many jobs that accept little to no experience. I’ve had some good interviews but I haven’t been moving forward to offers because of my lack of experience. So I’ve decided to take some more classes in my free time to beef up my resume. I know something will stick soon…it has to.
Anyways, that sums up my life currently. It’s been a lot better than you’ve witnessed in the past. I am so lucky and grateful you guys get to watch and grow with me! I’ll start brainstorming up some new ideas for blog posts now that life is starting to become busy.